This resource toolkit and reference material is meant for First Nations, Métis and Inuit families and communities to help support individuals with cancer who have palliative care needs. These education materials can be used by anyone in the community.
What is in the Toolkit
- A First Nations, Inuit and Métis definition of palliative care
- Personal stories and other resources to help First Nations, Inuit and Métis families and communities develop capacity in palliative care and cope with grief and loss
- Information to support decision-making and planning for those with advanced cancer
- Information to help caregivers in caring for their loved ones with advanced cancer
Tools for the Journey: Palliative Care in First Nations, Inuit and Métis Communities, a Resource Toolkit
Download these PDF brochures, then print them double-sided and fold in thirds.
||Topics included |
|Understanding the Diagnosis for Patients and Caregivers
- What palliative care means, from the perspective of First Nations, Inuit and Métis people and in the context of an advanced cancer diagnosis
- Sample questions to ask healthcare providers
- Choices a patient and their family might need to make
|Teachings to Support Grief and Loss
- Grief and loss from the perspective of First Nations, Inuit and Métis beliefs and teachings related to passing on to the spirit world
- Suggested ways of supporting and respecting the patient and ensuring support for the family
|What to Expect: Making Decisions and Plans
- The kinds of decisions a patient might need to make regarding personal care, legal and financial concerns
- Terms such as advance care planning and powers of attorney
|Taking Care of Your Loved One
- General information to help primary caregivers talk to their loved one about their wishes and arrange for their care
- Tips for supporting their loved one
- Encouragement for caregivers to ask for help
- Tips for self-care
- Guidelines for working together effectively to ensure that First Nations, Inuit and Métis individuals’ needs and choices are respected in the context of palliative care
|Who To Talk To For Support
- Information and resources for the patient and family
- A listing of online resources
- Contact information for Supportive Care Programs and Aboriginal Patient Navigators
This package of reference material supplements the information in the brochures. Print just the sections you need, or assemble the entire package into a binder.
||Information in this Section |
|Cover insert for binders |
|Table of Contents
|Table of Contents |
|Overview of the Toolkit |
|A brief form for providing feedback on the Toolkit |
|Section A: Resources
|Resources and information to assist First Nations, Inuit and Métis communities in providing palliative care, including: |
- Pain and symptom management support
- Services provided by the Canadian Cancer Society
- A listing of online videos and helpful websites
- Additional information on regional palliative services and networks
|Section B: Palliative Care, Diagnosis and Working Together
- A working definition of palliative care from the perspective of First Nations, Inuit and Métis people
- Additional definitions of palliative care from a public health perspective.
- Information related to cancer including metastatic and advanced cancer,
- Tools for coping and communicating with the healthcare system to ensure diagnosis and options are understood
|Section C: Teachings to Support Grief and Loss in First Nations, Inuit and Métis Communities
- General information and resources on grief and loss
- Personal stories and traditional teachings for individuals and families in First Nations, Inuit and Métis communities who are experiencing grief related to a loved one’s cancer or other life-threatening illness
- List of online videos with personal stories of First Nations, Inuit and Métis individuals and families’ cancer experiences
- List of resources to help talk about illness and dying
|Section D: What to Expect - Making Decisions and Plans
- Information and guidance on making personal care choices and final wishes at end of life
- Explanations of legal documents and some terminology
- Workbooks on advance care planning and a sample Power of Attorney (“living will”)
|Section E: Understanding the Diagnosis for Patients and Caregivers
- Information and resources to help caregivers in caring for their loved ones
How and Why We Produced this Toolkit
We produced this toolkit based on input from First Nations, Inuit and Métis people on what palliative care means to them and what kind of information and support they need relative to palliative care. These conversations took place in a series of focus groups and interviews held across Ontario in 2013–2014. This input was used to create this toolkit of resource materials to respond to the palliative care information needs of First Nations, Inuit and Métis communities.
Palliative care is one of the priorities identified in Ontario’s Aboriginal Cancer Strategy II . The strategy commits to directly engage with First Nations, Inuit and Métis leaders and health networks in a community-based and holistic way to reduce cancer in First Nations, Inuit and Métis people, and to ensure those with cancer live longer and better lives.
Tools for the Journey: Palliative Care in First Nations, Inuit and Métis Communities , a Resource Toolkit, was produced by our Aboriginal Cancer Control Unit.
With thanks to the many First Nations, Inuit and Métis individuals across Ontario whose ideas helped to shape this toolkit.